Discouraging results. Four pain-free days after last month's injection, only two days following last week's injection. Marina will be meeting with Dr. Deviren on June 2nd, to discuss options: more injections; different medication; wait to see if increased Topomax dosage has an effect; or more surgery.
On another hand: our Friday evening circle dance group has been meeting without interruption for over 20 years. The dances range from slow and meditative to rather lively, and sometimes downright silly. One that is quite lively and quite silly is a modern jitterbug version of a Greek dance called the Misirlou. As it happened, Marina was to be brought to the dance venue about halfway through our two-hour session. She was not there when I went to put on the jitterbug music. But when I returned to the circle to join the dance, there she was, in the circle, doing this quite lively dance. Yes, it was done through some pain, but it was done, and that seems awfully encouraging.
And the following day, she went into Rigpa, the Tibetan Buddhist center she has been involved with for many years, for the first time since December, and stayed for more than half of an all-day teaching, until fatigue set in.
So 'ordinary life' comes slowly, and with difficulty, but it does come.
Posted by John Bear
at 11:00 PM PDT
